World IBD Day - 19th May 2015
300,000 people in the UK have Crohns or Colitis and over 5 million worldwide... Why you should care about World IBD Day even if you don't have IBD.
Every 30 minutes, someone in the UK is diagnosed with Crohns Disease or Ulcerative Colitis and that is why awesome charity Crohns and Colitis UKare using World IBD Day on 19th May 2015 to raise awareness and enable more patients to access the best care possible. With at least 300,000 people in the UK living with Crohn’s or Colitis, this means 1 in 210 people are living with these unpredictable, life-long and potentially life-threatening conditions.
People tell me that my blog So Bad Ass made them realise that they have friends, family member and colleagues who have Crohns or Colitis, that they shared a blog post and it encouraged someone close to them to open up and admit their illness, which in turn allowed them to speak freely and access support. The more open we become about these types of illness, the better we can support those with IBD. One of the toughest things to deal with is the isolation and embarrassment, and that is why my aim for this blot has always been to #stoppoobeingtaboo.
With so many people suffering and more being diagnosed all the time, the chances are that you know someone with IBD, perhaps you just aren't aware of it. The more we talk openly, the easier it is for sufferers to admit to those around them the real hardships of living with IBD.
On World IBD Day, Crohn’s and Colitis UK are launching ‘My Crohn’s & Colitis Care’, a patient guide to the top 10 essentials of a good IBD service. This practical resource has been developed with the support of patients, healthcare professionals and health organisations, and is the patient companion to The IBD Standards². The aim of the new guide is to empower people with IBD to get the best from their local health service by working in partnership with their healthcare team.
So what can you do?
You can wear purple on 19th May and ask others to do so too and make a donation to Crohns and Colitis UK either by text. You can donate any amount, to donate £5, you would Text PURP19 £5 to 70070 Alternatively, you can make an online donation at justgiving.com/crohnsandcolitisuk
If you can't afford to donate money, then please take the time to share stories of IBD on social media, you never know, that one act could give someone the courage to open up and get support.